News Summary
CureDuchenne, a nonprofit focused on Duchenne muscular dystrophy research, will hold its second annual Ladies Luncheon on October 14 at Shady Canyon Golf Club. The event will feature a luxury fashion presentation by Max Mara South Coast Plaza, gourmet dining, and stories from individuals affected by DMD. Proceeds will fund critical research aimed at curing this severe muscular condition. Founder Debra Miller emphasizes the importance of community support for enhancing care and hope for families impacted by DMD.
Newport Beach – CureDuchenne, a nonprofit organization dedicated to funding research for a cure for Duchenne muscular dystrophy (DMD), is set to host its second annual Ladies Luncheon on Tuesday, October 14, at Shady Canyon Golf Club. The event aims to raise funds critical for advancing research focused on curing DMD.
Guests attending the luncheon will enjoy an afternoon filled with fashion, fine food, and inspirational stories. A luxury fashion presentation by Max Mara South Coast Plaza will take center stage, showcasing Italian luxury and style, with sponsorship and production support from South Coast Plaza. Attendees will experience a gourmet lunch complemented by wines from Simon Family Estate, a boutique winery from Napa Valley.
In addition to the culinary delights, the event will provide attendees with firsthand accounts from individuals affected by DMD, along with insights into groundbreaking research efforts backed by CureDuchenne. Every dollar raised at the luncheon will contribute directly to the mission of CureDuchenne, which has a strong focus on innovative research aimed at curing DMD.
Debra Miller, founder and CEO of CureDuchenne, described the Ladies Luncheon as a vital opportunity to connect, raise awareness, and fund research that accelerates progress toward a cure for Duchenne muscular dystrophy. DMD is a severe and common form of muscular dystrophy, predominantly affecting males, with an occurrence rate of approximately 1 in every 5,000 live male births.
Children diagnosed with DMD suffer from progressive muscle weakness, which leads to loss of mobility and often results in early mortality. Currently, there is no available cure. The research funded by CureDuchenne is critical for paving the way for new treatments and potentially discovering a cure. The organization has actively been involved in DMD research for over 20 years and is recognized as a leader in areas of research, patient care, and innovation.
CureDuchenne employs a venture philanthropy model, which has proven effective in advancing 19 projects to human clinical trials. This model has also played a significant role in fostering the development of the first FDA-approved drug for DMD. Beyond funding drug research, CureDuchenne created a certification program for physical and occupational therapists specializing in Duchenne, as well as a data-integrated biobank that enhances research efforts.
Looking towards the future, advancements in drug therapies, including exon-skipping and gene therapy, are anticipated to significantly benefit individuals living with DMD. The community’s support remains critical, with Miller expressing gratitude for this involvement and highlighting the continuous need for efforts that improve care and bring hope to families affected by the condition.
Tickets and sponsorship opportunities for the Ladies Luncheon are available for purchase at the official event website. The funds raised will bolster the ongoing mission of CureDuchenne to find a cure for Duchenne muscular dystrophy and support those impacted by this devastating disease.
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Additional Resources
- Newport Beach Indy: CureDuchenne’s Ladies Luncheon Returns
- Wikipedia: Duchenne muscular dystrophy
- Locale Magazine: Best Newport Beach Events
- Google Search: Duchenne muscular dystrophy
- LA Times: Newport Beach Resident Who Started CureDuchenne
- Google Scholar: CureDuchenne
- Newport Beach Indy: CureDuchenne Raises $1.1 Million
- Encyclopedia Britannica: Duchenne muscular dystrophy
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COSTA MESA STAFF WRITER The COSTA MESA STAFF WRITER represents the experienced team at HERECostaMesa.com, your go-to source for actionable local news and information in Costa Mesa, Orange County, and beyond. Specializing in "news you can use," we cover essential topics like product reviews for personal and business needs, local business directories, politics, real estate trends, neighborhood insights, and state news affecting the area—with deep expertise drawn from years of dedicated reporting and strong community input, including local press releases and business updates. We deliver top reporting on high-value events such as the OC Fair, Concerts in the Park, and Fish Fry. Our coverage extends to key organizations like the Costa Mesa Chamber of Commerce and Boys & Girls Clubs of Central Orange Coast, plus leading businesses in retail, fashion, and technology that power the local economy such as Vans, Experian, and South Coast Plaza. As part of the broader HERE network, including HEREAnaheim.com, HEREBeverlyHills.com, HERECoronado.com, HEREHollywood.com, HEREHuntingtonBeach.com, HERELongBeach.com, HERELosAngeles.com, HEREMissionViejo.com, HERESanDiego.com, and HERESantaAna.com, we provide comprehensive, credible insights into California's dynamic landscape.
